" You're son has cancer. Neuroblastoma is the type of cancer he has." -Words no parent could ever be prepared to hear.
On July 29th, 2020 my 18 month old son Ahmari was diagnosed with stage 3 high risk Neuroblastoma. A tumor the size of a small football located on his right adrenal gland, kidney, and some lymph nodes surrounding the area. After what feels like 1000 trips back and forth to Syracuse, numerous hospital stays, some for weeks at a time and some just for a few days, he has completed 6 rounds of induction chemotherapy. On October 30, 2020 he also underwent a very long, intense and difficult 6 hour resection surgery in which the surgeon was able to remove 90%-95% of the tumor, but also had to remove his right kidney and adrenal gland. Unfortunately, there were 2 pieces of tumor tissue that he had to leave untouched due to the location. We have since made the difficult decision to skip stem cell transplant and transfer his care to MSKCC in NYC. On March 8, 2021 Ahmari had a second resection surgery to remove any remaining residual tumor. After a very long 8 hours, Dr. Laquaglia told us the surgery was a complete success. Ahmari then completed his proton radiation on April 19, 2021 and has now started immunotherapy.
So, now here we are.. May 2021!! 10 months has passed since hearing those dreadful words from a doctor I had never met. Ive had more sleepless nights than I'd like to count, staring out the windows of the 11G unit with tears rolling down my face just looking up at the sky asking WHY!?! It's been a very challenging, scary, very emotional, and very stressful road so far and it's far from over but he's here, he's alive, and he's fighting. He has faced this battle head on and has proved to be by far the strongest person I have ever known. There isn't a single person that has had the pleasure of meeting Ahmari that doesn't fall in love with his silly personality, or his beautiful smile. He touches everyone's heart in one way or another. He is the light to any dark room. He is the sunshine to any rainy day. He is the laughter that drowns out any sadness. He is my absolute truest definition of perfection. He is my hero.